Friday, January 18, 2008

Baby Jaden update and plea for prayers

Awhile back, I posted about a baby dying of Krabbes disease. His name is Jaden Del Taylor, and he's only 6 months old. Please pray for a miracle. This Del Taylors need the FDA to give them emergency approval for the drug Aimspro. The Del Taylors went to London for Jaden to receive the Aimspro injections, which worked wonders, but they only came home with 4 more injections. Jaden needs one injection per day. Since they only came home with 4 injections, they gave him one injection a week, but now those have run out. There are 60 vials of this drug waiting to be shipped to them from Australia, but without FDA approval, that won't happen. This family needs this drug because their son will die without it. The only cure for Krabbes is a bone marrow transplant, but Jaden doesn't qualify for the transplant because he is in the last stages of this disease. He will qualify for this transplant if they get Aimspro because Aimspro puts him back into the early stages of the disease. To read more, keep up with their blog, and know how to pray specifically, go Saving Jaden.

One more thing that is super important to this family is newborn screening. Only New York screens for Krabbes Disease at birth. If Jaden had, had this screening at birth, he could have have the bone marrow transplant soon after. The Del Taylors talked to a local tv station about this: They are trying to get the word out that more states need to be screening for this in order to help save lives.

Thanks for praying!

1 comment:

  1. Jaden's legacy lives on...he will never be forgotten!